The Undying: Pain, vulnerability, mortality, medicine, art, time, dreams, data, exhaustion, cancer, and care

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Most Anticipated: The Great Second-Half 2019 Book Preview

We seem to say this every six months or so, but what a year for books. The second half of 2019 brings new novels from Colson Whitehead, Ben Lerner, Jacqueline Woodson, and Margaret Atwood. It brings hotly anticipated first novels by Ta-Nehisi Coates and Wayne Koestenbaum. It brings Zadie Smith’s very first short story collection. Riveting memoirs. Coming-of-age stories. With more than 100 titles, you’re going to have your hands full this fall. As always, please let us know what we missed in the comments, and look for additional titles in our monthly previews.

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JULY
The Nickel Boys by Colson Whitehead: Fresh off a Pulitzer for The Underground Railroad, Whitehead returns to the subject of America’s racist history with this tale of a college-bound black man who runs afoul of the law in Jim Crow Florida and ends up in the hellish Nickel Academy, where boys are beaten and sexually abused by the staff. In an early review, Publishers Weekly calls The Nickel Boys “a stunning novel of impeccable language and startling insight.” (Michael)

The Need by Helen Phillips: This book had me at “existential thriller about motherhood” but when I found out that the mother in the book is also a paleobotanist, I pre-ordered, because I’ve spent a lot of time in the American Museum of Natural History staring at plant fossils. In case you need more convincing, it has garnered starred reviews from Kirkus and Publishers Weekly, is on multiple summer reading lists, and is from the author of The Beautiful Bureaucrat and Some Possible Solutions. Also, the cover is gorgeous. (Hannah)

A Prayer for Travelers by Ruchika Tomar: In this modern-day Western, Tomar tells the story of a young woman’s search for her missing friend in the harsh desert landscape along the California-Nevada border. A gritty portrait of small-town life and the violence that plagues it, the novel formally experiments with time and narration. Publishers Weekly praises Tomar for “employing authorial sleight-of-hand…intentionally scrambl[ing] the chronology of the chapters, the better to immerse the reader in the disorder and dysfunction that shape her characters’ lives.” (Matt)

Speaking of Summer by Kalisha Buckhanon: Buckhanon’s latest novel, her fourth, takes the reader on a quest to find out why a woman in Harlem disappeared after walking to the roof of her brownstone one day. The missing woman’s sister, Autumn, sets out to solve the case, after learning the police aren’t likely to provide her with answers. Autumn’s life unravels as her grief becomes overwhelming, and she grows steadily more fixated on the plight of missing women. (Thom)

The Vexations by Caitlin Horrocks: In what Kirkus describes as “finely written and deeply empathetic, a powerful portrait of artistic commitment and emotional frustration,”  Horrocks tells the story of Erik Satie and his siblings, Conrad and Louise. Set in La Belle Époque Paris, The Vexations is a finally wrought, sensitive novel about family and genius, and the toll that genius exacts on family in pursuit of great art. (Adam P.)

The Book of X by Sarah Rose Etter: Etter’s first novel, The Book of X, is a “natural extension” of her wild and raucous collection of stories, Tongue Party, which Deb Olin Unferth selected as winner of (the now defunct) Caketrain’s chapbook competition. Told in fragments, The Book of X alternates between the story of the alienated and disfigured Cassie, born with her stomach twisted in the shape of a knot, and her fantasies of an alternate life for herself. Scott McClanahan calls The Book of X “our new Revelation,” while Blake Butler compares Etter’s voice to Angela Carter’s, declaring, “there’s a new boss in the Meat Quarry.” (Anne)

Very Nice by Marcy Dermansky: Emma Straub says Dermanky’s fourth novel is, “her best yet.” If you’ve read Bad Marie and The Red Car, you know the bar is high and that no writer balances on the sharp edge between comedy and tragedy quite like Dermansky. Very Nice weaves several stories together, a wealthy divorcée in Connecticut, her college-age daughter, a famous American novelist, and a poodle, to ask a timely question—how much bad behavior from a bad man can we take? Maria Semple says it best, “so sexy and reads so smooth.” (Claire)

Circus: Or, Moira Orfei in Aigues-Mortes by Wayne Koestenbaum
Poet, literary critic, and all-around cultural polymath Koestenbaum returns with this post-modern, Nabokovian take on creativity, sexuality, classical music, and the circus in his first novel. Drawing on his interests in camp, Queer theory, and the symphony hall, which he’s explored in critical works like The Queen’s Throat: Opera, Homosexuality, and the Mystery of Desire and The Anatomy of Harpo Marx, Koestenbaum gives us the evocatively named Theo Mangrove, a polyamorous pianist who fantasizes that the Italian circus performer Moira Orfei will accompany him on his comeback concert in a medieval, walled French city. Koestenbaum’s hallucinatory lyricism lends itself to declaration like “After an intense orgasm we produce voice from our head rather than our chest;” an aphorism every-bit worthy of poet John Shade in Vladimir Nabokov’s Pale Fire. (Ed)

They Could Have Named Her Anything by Stephanie Jimenez: Fulbright scholar Jimenez returns to her native New York in her first novel They Could Have Called Her Anything. A subway ride from Queens to the Upper East Side will see you take the F train while switching to the 6 or the Q, for an investment of about 45 minutes, but the actual distance between Maria Anis Rosario and her privileged friend Rocky’s life couldn’t be further apart. Jimenez’ debut explores the unexpected friendship between these girls at the elite private school both attend, a world where even though “certain girls at Bell Seminary were intimidated” by Maria, a connection would be made between her and Rocky across the chasms of race and class which define the city. (Ed)

Stay and Fight by Madeline ffitch: The first novel from ffitch, the author of the 2014 short story collection Valparaiso, Round the Horn, and a longtime environmental activist living in Appalachia, Stay and Fight is both a social protest novel and the moving story of an unusual family. When Lily and Karen’s son is born, they know they’ll have to leave the women-only land trust where they’ve been living. Helen, who homesteads on 20 acres nearby, invites them to join her, and they settle into a new kind of domestic routine. But over the years the outside world edges nearer, threatening both the family and the Appalachian land that supports them. (Kaulie)

Costalegre by Courtney Maum: Maum’s third novel, her follow-up to I Am Having So Much Here Without You and Touch, is a pivot to historical fiction. Set in 1937, Costalegre is about heiress and art collector Leonora Calaway (modeled after Peggy Guggenheim), who bankrolls a group of Surrealist artists to flee Europe for Mexico. The book, narrated by Leonara’s 15-year-old daughter, has received starred reviews from Kirkus Reviews and Publishers Weekly; the latter of which called it “a fascinating, lively, and exquisitely crafted novel.” Samantha Hunt says that Maum’s latest is “as heady, delirious and heartbreaking as a young girl just beginning to fall in love with our world.” (Edan)

The Lady in the Lake by Laura Lippman: Most people probably know Lippman as a bestselling crime novelist, but I was recently introduced to her through Longreads, in her delightfully frank essay “Game of Crones” about being an old mother and staying true to her ambition to write a novel every year. Her latest novel is set in 1960s Baltimore and follows a housewife, Maddy Schwartz, who reinvents herself as a reporter after helping to solve a murder. Maddy becomes involved in another murder case when the body of a young woman is found at the bottom of city park lake. (Hannah)

Knitting the Fog by Claudia D. Hernández: This debut memoir of a young girl’s journey from Guatemala to L.A. weaves together personal essay and bilingual poetry. Described by publisher Feminist Press as “harrowing, candid, complex,” and by Bridgett M. Davis as bringing us “the immigrant experience in a refreshingly new light,” this one promises to be both timely and aesthetically exciting in its hybridity. (Sonya)

Jacob’s Ladder by Ludmila Ulitskaya (translated by Polly Gannon): With a cast of characters large enough to populate a mid-size village, Ulitksaya delivers an epic, Tolstoyan Russian novel that may just win her some Anglophone fans but surely will impress no one in the Kremlin. For those ready to invest the time (560 pages), her look at the clash of free will and determinism provides a solid enough critique of the tragic, untidy histories of Russia and Ukraine over the last half of the 20th century in a lithe translation by Polly Gannon. (Il’ja)

Turbulence by David Szalay: In the Man Booker Prize-shortlisted author’s latest book, 12 people take 12 flights around the world, touching each other’s lives in profound and unpredictable ways. Labeled as a novel but structured as a series of linked stories, Turbulence explores the interconnected nature of human relationships today. In Alex Preston’s review for The Guardian, he describes Szalay as an author “whose curiosity about his fellow humans is boundless.” (Jacqueline)

The Lightest Object in the Universe by Kimi Eisele: A worthy addition to the realm of speculative fiction, this debut novel “imagines what happens after the global economy collapses and the electrical grid goes down.” More than just standard techno-challenged-humanity-rendered-atavistic fare, this is a love story. More accurately, the quest for love and its potential in a world demanding to be rebuilt. (Il’ja)

Beirut Hellfire Society by Rawi Hage: Set in 1978 war-torn Beirut, this tragicomic novel follows Pavlov, the son of a recently deceased local undertaker, as he joins the Hellfire Society – a secret group his late father was a member of. Throughout the novel, Hage, the second Canadian to win the prestigious Dublin IMPAC Literary Award, asks what it means to live through war, and what can be preserved in the face of imminent death. In Canada, Beirut Hellfire Society was shortlisted for the Rogers Writers’ Trust Fiction Prize and the Governor General’s Literary Award for fiction. (Jacqueline)

Say Say Say by Lila Savage: Ella, an artistic grad school dropout turned caretaker, is hired to care for Jill, a woman who’s been left a shell of her old self after a traumatic brain injury leaves her largely nonverbal. But as she watches the dynamic between Jill and her loving husband, Bryn, Ella starts to question her own relationships—and get drawn further into the couple’s. Savage’s debut novel, informed by her own time working as a caretaker, gently digs at the roots of what keeps people together in the face of suffering and loss. (Kaulie)

Shapes of Native Nonfiction edited by Elissa Washuta and Theresa Warburton: This anthology of essays by Native writers takes the formal art of basket weaving as an organizing theme, so that the authors, who include Deborah A. Miranda, Terese Marie Mailhot, Billy-Ray Belcourt, and Kim TallBear, come together to produce something akin to a well-woven basket. Malea Powell writes that the book “offers us nonfiction that reflects, interrogates, critiques, imagines, prays, screams, and complicates simplistic notions about Native peoples and Native lives.” (Jacqueline)

Three Women by Lisa Taddeo: This highly anticipated debut is not about sex but rather about “the heat and sting of female want,” according to author Lisa Taddeo, who spent years criss-crossing the country and conducting thousands of hours of interviews with women about the sources and consequences of their desires. The result is a triptych: a North Dakota woman who is labeled “a freaky slut” for reporting an affair with her high school English teacher; an unfulfilled Indiana wife and mother who reconnects with a high school crush and winds up “a tangle of need and anxiety”; and a Rhode Island restaurateur whose husband picks her partners, then watches them have sex. The book has already been dubbed “an instant feminist classic.” (Bill)

The Gifted School by Bruce Holsinger: Ambition, competition, and the fear of behind left out threaten to rip apart the bond between four families who are offered an unexpected chance at getting their kids into an elite school. The Paris Review notes that this satirical takedown of the concept of meritocracy in contemporary America serves as a timely expose of “the hypocrisy of white liberalism” that drives the pursuit of prestige. Caution: sense of humor required. (Il’ja)

The Wedding Party by Jasmine Guillory: In just two years, Jasmine Guillory has become a New York Times bestselling author and major force (the author of the first romance novel selected for Reese Witherspoon’s coveted book club, for one). Following The Wedding Date and The Proposal, The Wedding Party is one of two novels Guillory has coming out this year—look for Royal Holiday in the fall. (Lydia)

Screen Tests by Kate Zambreno: Kate Zambreno’s Screen Tests is just as ineluctable as the series of short, silent, black-and-white film portraits by Andy Warhol that they’re named after. This too gives a good sense of the book’s structure: a series of short glimpses that look deeply, and often contain autobiographical components or disquisitions. The effect, says Kirkus, is to “spin around like floating objects on an Alexander Calder mobile precariously tied together with ideas and images. Or rather, take Amber Sparks’ assessment: “If Thomas Bernhard’s and Fleur Jaeggy’s work had a charming, slightly misanthropic baby—with Diane Arbus as a nanny— it would be Screen Tests.” (Anne)

A Girl Goes into the Forest by Peg Alford Pursell: Pursell is the founder of the national reading series Why There are Words, as well as the WTAW press, which puts out excellent books each year. Now she publishes a collection of eerie, short (sometimes very short) stories, many of them focusing on themes of mothers and daughters, with themes from folklore and fairytale. Publishers Weekly called the collection “haunting,” “potent,” and “sharp but disturbing.” (Lydia)

What Do We Need Men For? A Modest Proposal by E. Jean Carroll: This is a work of memoir by a woman who was raped by Donald Trump, who is the current President of the United States. A haunting excerpt from the book, with an account of the rape, was published here in The Cut. (Lydia)
AUGUST
Coventry by Rachel Cusk: Cusk’s Outline trilogy—or as I think of it, The Cuskiad—is a masterpiece of modern literature, a formally adventurous exercise in narrative erasure that explores marriage, divorce, family, art, and representation. In her forthcoming essay collection Coventry, Cusk groups these thematic concerns into three sections, broadly: memoir, art, and criticism—although as Publishers Weekly says, the enterprise is bound by “the uses of narrative, particularly for allowing people to make sense of their lives… something Cusk interrogates exceptionally well throughout this well-crafted compilation.” (Adam P.)

The World Doesn’t Require You by Rion Amilcar Scott: If Scott’s talent didn’t catch your attention with Insurrections, his award-winning debut, he’ll draw even more readers with this second book. Cross River, Maryland, the fictional town of his first book, returns in this new story collection. Scott can shift between irreverent and complex in a single story—a single sentence—as in “David Sherman, the Last Son of God”: “David didn’t believe what his older brother preached and wondered if Delante, who now called himself Jesus Jesuson (everyone, though, referred to him as Jeez), really believed, but he didn’t ask.” Also: all praise to story collections like this one that end with an anchoring novella! (Nick R.)

Trick Mirror by Jia Tolentino: Tolentino’s essay collection is rangy and deft—nothing is treated superficially here. “I wrote this book because I am always confused,” she says in the introduction, but what follows are ardent and skilled attempts to make sense of the world. She tackles our digital lives (“The internet reminds us on a daily basis that it is not at all rewarding to become aware of problems that you have no reasonable hope of solving.”), athleisure and women’s bodies (“These days, it is perhaps even more psychologically seamless than ever for an ordinary woman to spend her life walking toward the idealized mirage of her own self-image”), her evangelical childhood and departure from belief (“Christianity formed my deepest instincts: it gave me a leftist worldview, an obsession with everyday morality, an understanding of having been born in a compromised situation, and a need to continually investigate my own ideas about what it means to be good.”). Also: contemporary scams, her stint on reality TV, and the panoply of nuptials she attends: “My boyfriend maintains a running Google spreadsheet to keep track of the weddings we’ve been invited to together.” (Nick R.)

The Hotel Neversink by Adam O’Fallon Price: The second novel by Adam O’Fallon Price, a staff writer at The Millions, is the rambunctious, ambitious, decades- and generations-jumping tale of the Sikorsky family, who transform an abandoned mansion into the titular jewel of the Borscht Belt. Inspired by Grossinger’s Catskills Resort Hotel, Price uses a revolving cast of narrators to tell a story that is part murder mystery and part ghost story, with a dark secret lurking at its core. The novel asks a chilling question about the children who disappear from the towns and woods around the Hotel Neversink: Are they victims of coincidence, or part of a calculated plot to destroy the Sikorskys? (Bill)

Everything Inside by Edwidge Danticat: A collection of eight vigorous, compelling stories provides a storyteller’s insight to how migration to and from the Caribbean affected people’s lives, personalities, and relationships. Lovers, deeply wounded by the catastrophic earthquake in Haiti in 2010, strive to reunite; an undocumented construction worker pictures his lover and adopted son in the last minute of his life; the christening of a baby reveals the chasm between the three generation of a family. “No one is immune from pain,” as Kirkus Review puts it, “but Danticat asks her readers to witness the integrity of her subjects as they excavate beauty and hope from uncertainty and loss.” (Jianan Qian)

Doxology by Nell Zink: New York City in the ’90s was not quite the hyper-sanitized playground for the super-rich which parts of it feel like today, with Nell Zink giving us a gritty account of the “worst punk band on the Lower East Side” right at the turn of the millennium. As the halcyon days of the 20th-century’s last decade end, grunge seemingly eclipsed with the falling of the twin towers, Doxology uses the personal and musical travails of bandmates Pam, Daniel, and Joe to investigate our current political and environmental moment. True to the Latin meaning of her title, Zink’s Doxology provides a means of praising God in a world where we’re so often faced with the finality of silence. Doxology, rather, provides the cacophony of punk. (Ed)

Drive Your Plow into the Bones of the Dead by Olga Tokarczuk (translated by Antonia Lloyd-Jones): The 2018 International Man Booker prize has done it again, this time with a noir murder mystery that is less whodunnit than it is existential inquiry, namely: what are we here for? The protagonist—Janina Duszejko—is a brilliantly rendered Polish Miss Marple, (sort of) who Tokarczuk has asking the hard questions with art that is subtle and penetrating. And, as it turns out, getting her into a lot of trouble at home, with a hard-right leaning Polish press labeling the book “anti-Christian” and the work of “a traitor.” The film adaptation (Spoor) a couple of years back just about shut the country down. Antonia Lloyd-Jones’s translation from Polish sparkles. (Il’ja)

The Yellow House by Sarah M. Broom: In 2015, Broom published an essay in The New Yorker about her family’s house in New Orleans that has sat with me since I read it. The piece starts with questions: “In the ten years since Hurricane Katrina, what has plagued me most is the unfinished business of it all. Why is my brother Carl still babysitting ruins, sitting on the empty plot where our childhood home used to be? Why is my seventy-four-year-old mother, Ivory Mae, still unmoored, living in St. Rose, Louisiana, at Grandmother’s house? We call it Grandmother’s even though she died ten years ago. Her house, the only one remaining in our family, is a squat three-bedroom in a subdivision just off the River Road, which snakes seventy miles along the Mississippi, where plantation houses sit alongside grain mills and petrochemical refineries.” The next year, she was a Whiting Fellow, and this year, readers can get their hands on the book, a gorgeous work of memoir and reporting about place and family that feels like the apotheosis of a form. (Lydia)

The Trojan War Museum by Ayşe Papatya Bucak: Apollo wanders through a museum, trying to make sense of war and his own history. A chess-playing automaton falls in love. Dead girls tell the story of a catastrophe and its aftermath. Bucak’s debut story collection is a surrealist wunderkammer in which the lines between history and myth, reality and performance, and the cultural and personal are blurred and redrawn. The result: “narratively precise” stories that “are also beautiful vignettes on human culture, deftly probing the fissures and pressure points of history and bringing up new forms,” writes The Millions’ own Lydia Kiesling. (Kaulie)

Inland by Téa Obreht: In 2011, at age 26, Obreht burst onto the literary scene with her first novel The Tiger’s Wife, an inventive, fable-like retelling of the wars that ravaged her native Serbia in the 1990s. Eight years later, Obreht returns with – wait for it – a Western set in the Arizona Territory in 1893. No, we didn’t see that coming, either. Early reviews are rapturous, including one from Booklist that called it “a tornadic novel of stoicism, anguish, and wonder.” Yes, tornadic. (Michael)

The Memory Police by Yoko Ogawa (translated by Stephen Snyder): Critically acclaimed Japanese writer Ogawa’s new novel takes place in a society where objects disappear and where the terrifying Memory Police pursue citizens who recall the disappeared objects. The protagonist is a young novelist who discovers her editor is in danger and decides to hide him beneath her floorboards. The Memory Police explores trauma, loss, memory, and surveillance, and will astound readers. Chicago Tribune calls it “a masterful work of speculative fiction” and Esquire writes, “Ogawa’s taut novel of surveillance makes for timely, provocative reading.” (Zoë)

The Overthrow by Caleb Crain: A new novel from the author of Necessary Errors, The Overthrow is a romance and a story of relationships set against the backdrop of the Occupy movement, exploring, power, idealism, technology, and the way we forge connections in the dystopian world we’ve created. Keith Gessen calls it “a brilliant, terrifying, and entertaining book…part subtle novel of contemporary manners, part intellectual legal thriller, and part prophetic dystopia: Henry James meets Bonfire of the Vanities.” Sign me up. (Lydia)

The Grave on the Wall by Brandon Shimoda: As we read daily of the horrors of detainment camps at the border, poet Brandon Shimoda directs our attention back to a not dissimilar blight in Grave on the Wall. It’s an elegy for Shimoda’s dead grandfather, Midori, who after Pearl Harbor was incarcerated in internment camps despite having lived in the U.S. for over 20 years. Don Mee Choi calls Grave on the Wall “a remarkable exploration of how citizenship is forged by the brutal US imperial forces—through slave labor, forced detention, indiscriminate bombing, historical amnesia and wall.” Shimoda’s remembrance is also for the living, says Karen Tei Yamashita: “we who survive on the margins of graveyards and rituals of our own making.” (Anne)

When I was White by Sarah Valentine: A memoir from the author, translator, and scholar about being raised in Pittsburgh, Pennsylvania as a white person, only to learn at age 27 that her father was a black man. The memoir explores the painful process of uncovering the past, interrogating the decisions her family made, and reconceiving her own identity. Publishers Weekly calls it “a disturbing and engrossing tale of deep family secrets.” (Lydia)

First Cosmic Velocity by Zach Powers: Powers’s debut novel is the story of the big lie behind the Soviet space program: They can send manned flights up, they just can’t seem to get them back down. And so they are using twins – one who will touch the face of God and the other who will stay behind on terra firm to make sure there’s an acceptable, Kremlin-approved PR tour afterward if things go badly up in space. Which they inevitably do. Mixing history and fiction, the book isn’t so much about the foibles of geopolitics as it is about one man’s search for truth in a world built on lies. (Il’ja)

White Flights: Race, Fiction, and the American Imagination by Jess Row: “White flight” typically refers to the movement of white Americans into segregated communities, but in this work of criticism, Row extends the term to literature. Combining memoir as well as literary, filmic, and musical analysis, Row argues for an understanding of writing as reparative, and fiction as a space in which writers might “approach each other again.” Kirkus calls it “wide-ranging, erudite, and impassioned.” (Jacqueline)

The Pretty One: On Life, Pop Culture, Disability, and Other Reasons to Fall in Love with Me by Keah Brown: The cultural narrative surrounding disability has long been overdue for a complete overhaul, and in her debut book, The Pretty One, Keah Brown offers her refreshing, joyful voice to this movement. Brown, a disability rights advocate and creator of the viral #DisabledAndCute campaign, explores aspects of pop culture, music, family, self acceptance, and love in her essays, all the while challenging society’s assumptions of what it means to be black and disabled. (Kate Gavino)

I Heart Oklahoma! by Roy Scranton: Few critics quit understand the implications of our cultural divisions in the warm autumn of the Anthropocene more than University of Notre Dame English professor Roy Scranton. Exploring themes that he’s written about in collections ranging from Learning to Die in the Anthropocene: Reflections on the End of a Civilization and We’re Doomed. Now What?: Essays on War and Climate Change, Scranton’s second novel returns us to a badly fractured America. A writer named Suzie travels a broken, pre-apocalyptic America that looks very much like our own nation, a place so “highly refined and audacious and dense that nobody care whether it’s bullshit or not.”

When the Plums Are Ripe by Patrice Nganang: The second in Nganang’s trilogy on Cameroon before and during WWII, When the Plums Are Ripe tells the story of the country’s growing involvement in the conflict as the colonized fight to free their colonizer from Axis control. But the book is as much poetry as history, with a structure calling on oral traditions and a poet-narrator who mourns the wounds of war. Publishers Weekly writes that “with lyrical, soaring prose, Nganang… challeng[es] the Euro-written history of colonialism and replac[es] it with a much-needed African one. The result is a challenging but indispensable novel.” (Kaulie)

Black Light by Kimberly King Parsons: A story collection rooted in the vastness and contradictions of Texas and composed by an author who refuses to shy away from the strange, ugly, and interesting, Black Light has been described as “Friday Night Lights meets Ottessa Moshfegh.” What more could a reader want, really? (Kaulie)

How to be an Antiracist by Ibram X. Kendi: With racial invective spewed from the Twitterer-in-Chief on down, many white Americans have become increasingly entrenched in their prejudices. Scholar Ibram X. Kendi returns to a subject which he illuminated so well in Stamped from the Beginning: The Definitive History of Racist Ideas in America,, asking how we avoid both fatalism and despair in imagining what a future, antiracist version of the United States might look like. Kendi’s answers are neither to embrace the myopic obstinacy of “color blindness,” nor the feel-good platitudes of “wokeness,” but rather to acknowledge that the individual responsibility of being antiracist is “an everyday process.” (Ed)

God Land: A Story of Faith, Loss, and Renewal in Middle America by Lyz Lenz: Lenz—a journalist whose profiles and personal essays are absolute must reads—brings a book that combines memoir and journalism. After the 2016 election, Lenz leaves her Trump-supporting husband and her church—and begins to travel to churches across the Midwest to understand the incomprehensible: faith in today’s America. Publishers Weekly’s starred review called the book a “slim but powerful debut on the faith and politics of Middle America.” (Carolyn)

A Particular Kind of Black Man by Tope Folarin: This debut novel tells the story of Tunde Akinola’s Nigerian family as they struggle to assimilate in the impossibly foreign world of Utah. As Tunde’s father chases his version of the American Dream and his mother sinks into schizophrenia, Tunde will be forced to spend his childhood and young adulthood seeking elusive connections—through his stepmother and stepbrothers, through evangelical religion, through the black students at his middle school and the fraternity brothers at his historically black college. This is a novel that will force readers to rethink notions of family, belonging, memory, and the act of storytelling. (Bill)

Empty Hearts by Juli Zeh (translated by John Cullen): Set in the near future, this novel, which Kirkus describes as a “thoughtful political thriller with a provocative sense of humor,” tells the story of Britta and Babak, who run an agency that provides suicide bombing candidates to activists/terrorists. In this post-Angela Merkel Germany, their agency provides a needed antidote to both the conservative government takeover and liberals’ passive acceptance of the new order. When two unknown suicide bombers show up in an airport, things get complicated. (Jacqueline)

Hard Mouth by Amanda Goldblatt: NEA Fellow Amanda Goldblatt’s first novel is as bold and unflinching as its title suggests. The book follows suburban Maryland-born and raised Denny as she literally runs away from her grief and inability to confront mortality, that has come in the form of her father’s terminal cancer diagnosis. As she flings herself into the wilderness, Denny is wildly unprepared and accompanied only by her imagination (& her imaginary friend, Gene) in what appears like a slow form of suicide. Goldblatt nails suburban MD ennui, outdoor unpreparedness, gritty sex scenes, and a refutation of sentimentality in what R.O. Kwon calls a “blazing feat of a book.” (Anne)


SEPTEMBER
The Water Dancer by Ta-Nehisi Coates: One of America’s most incisive voices on race and history turns to fiction with a story of a young enslaved man who escapes bondage for the North. Early readers marvel at how Coates manages to interweave a deeply researched portrait of the all-too-real horrors of Southern slavery with sly touches of magical realism. (Michael)

All This Could Be Yours by Jami Attenberg: Emma Cline pinpoints Attenberg’s strength, that she writes about death, family, sex, love, with, “a keen sense of what, despite all the sadness and secrets, keeps people connected.” The critically acclaimed and bestselling author’s seventh novel follows the tangled relationship of a family in crisis as they gather together in a sweltering and lush New Orleans. Their father, a power-hungry real estate developer, is dying. Told by alternating narrators, the story is anchored by daughter Alex, who unearths the secrets of who her father is and what he did. This book is, Zachary Lazar says, “another marvel of intelligence, humor, and soul.” (Claire)

Make it Scream Make it Burn by Leslie Jamison: Jamison (The Empathy Exams) credits the poet William Carlos Williams with a sentence that inspired her title: “What the artist does applies to everything, every day, everywhere to quicken and elucidate, to fortify and enlarge the life about him and make it eloquent—to make it scream.” To fortify and enlarge the world through eloquence—apt descriptions of Jamison’s new collection, which begins with the story of 52 blue, “the loneliest whale in the world,” whose existence “suggests not just one single whale as metaphor for loneliness, but the metaphor itself as salve for loneliness”—and ends with “The Quickening,” an essay addressed to her daughter: “Eating was fully permitted now that I was doing it for someone else. I had never eaten like this, as I ate for you.” Another wonderful book from this gifted writer. (Nick R.)

Red at the Bone by Jacqueline Woodson: At 56, Jacqueline Woodson is moving and shaking in both YA and adult literature realms. Her new adult novel brings together a clash of social classes via an unexpected pregnancy. Another slim, compressed volume à la Another Brooklyn, Red at the Bone moves “forward and backward in time, with the power of poetry and the emotional richness of a narrative ten times its length.” Two words: can’t wait. (Sonya)

The Dutch House by Ann Patchett: Patchett, who has long straddled the line between literary cred and pop bestsellerdom, follows up her prize-winning 2016 novel Commonwealth with another epic family saga, in this case kicked off by a real estate magnate’s purchase of a lavish suburban estate outside Philadelphia after World War II. Running from the late 1940s to the early 2000s, the novel is billed as “the story of a paradise lost, a tour de force that digs deeply into questions of inheritance, love and forgiveness.” (Michael)

The Testaments by Margaret Atwood: The much-anticipated follow up to The Handmaid’s Tale, this sequel takes place 15 years after the van door slammed on Offred and we were left wondering what was next—freedom, prison or death? The story is told by three female narrators from Gilead. In a note to readers, Atwood says two things influenced the writing of this novel. First, all the questions she’s been asked by readers about Gilead and, second, she adds ominously, “the world we’ve been living in.” (Claire)

Akin by Emma Donoghue: Donoghue is one of our most versatile writers. She does many things well, including historical fiction, middle grade series, and scripts for screen and stage. Akin, like her international bestseller Room, is positioned as contemporary fiction. It’s about a retired professor who plans to travel to Nice, France to discover more about his mother’s wartime past. Two days before the trip, circumstances mean he must take charge of his potty-mouthed pre-teen nephew. As the pair travel together, they uncover secrets about their family and discover a bond and, as the publisher’s blurb says, “they are more akin than they knew.” (Claire)

Heaven, My Home by Attica Locke: The universe will soon award us with a new Attica Locke novel! Heaven, My Home is the follow-up to Locke’s Edgar Award-winning thriller Bluebird, Bluebird, and it once again centers on black Texas Ranger Daren Matthews. This time, he’s pulled into the case of a missing nine-year-old boy—and the boy’s white supremacist family. The jacket copy declares: “Darren has to battle centuries-old suspicions and prejudices, as well as threats that have been reignited in the current political climate, as he races to find the boy, and to save himself.” Attica Locke is one of the best writers working today, and I cannot wait to read this. (Edan)

Furnace of This World: Or, 36 Observations About Goodness by Ed Simon: Simon, a staff writer at The Millions known for his deep dives into literary and intellectual history, meditates on the nature of goodness across 36 learned, suggestive observations. He calls this project “an artifact of things I’ve lost, things I’ve loved, things I’ve feared, things I’ve prayed for,” and presents it as “the moral equivalent of a Wunderkammer—a ‘Wonder Cabinet’— that is a strange collection of occurrences, theories, philosophies, narratives, and fictions.” This curious object is well worth a look inside. (Matt)

How to Be a Family: The Year I Dragged My Kids Around the World to Find a New Way to Be Together by Dan Kois: A terrible snowstorm can derail a well-planned life, and two feet of snow in one day was “the perfect crucible to reveal how broken our family life was. Our household operated like the nation’s air traffic network: we functioned, but forever on the edge of catastrophe.” Kois is funny and sometimes satirical, but always in service of a great end: the very real lament that family life is “flying past in a blur of petty arguments, overworked days, exhausted nights, an inchoate longing for some kind of existence that made more sense.” Kois and his family actually take the dizzying leap to leave behind their lives for a year—a trek that takes them from New Zealand to Kansas—and the result is a unique book that every overstressed and anxious (meaning = every) parent should read. (Nick R)

The Cheffe by Marie Ndiaye: Goncourt and Femina Prix-winning, French-born and Berlin-based Ndiaye brings us another woman-centered novel, this time about a GFC— Great Female Chef. The story is told from the perspective of a male sous-chef (and unrequited lover), from a perspective years onward. Ndiaye’s work is often described as “hypnotic,” so perhaps add this one to your summer-escape TBR list. (Sonya)

Who Put This Song On? by Morgan Parker: Award-winning poet Morgan Parker offers a new coming-of-age story featuring a protagonist that just can’t seem to figure it out. From spending her summer crying in bed to being teased about not being “really black” by her mostly white classmates, 17-year-old Morgan can see clearly why she’s in therapy. Parker’s account of teenage anxiety and depression will speak to readers of all ages, and the prose’s mix of heartbreak and hilarity makes it a prime candidate for film adaptation. Are you paying attention, Netflix? (Kate Gavino)

The Divers’ Game by Jesse Ball: In what Publishers Weekly called an “atmospheric, occasionally mesmerizing tale of haves and have-nots,” Ball (Census) returns with a novel about a society that has rejected equality and embraced brutality. Through vignettes, the novel reveals how the world descended into madness. A dystopian tale imbued with empathy, philosophical musings, and questions about compassion, generational trauma, and humanity. (Carolyn)

Year of the Monkey by Patti Smith: Patti Smith started writing this book on the Lunar New Year’s Day in 2016; she carried the project “in cafes, trains and strange motels by the sea, with no particular design, until page by page it became a book,” as she announced in her Instagram. This memoir evolves around the transformations both in her life and the American political landscape. Intriguing, disturbing yet humorous, with the boundary between fiction and nonfiction blurred, Smith’s work is unlikely to disappoint. (Jianan Qian)

Fly Already by Etgar Keret: Keret’s new short story collection offers all the virtues readers have come to expect from the oft-New Yorker-published Keret: intelligence, compassion, frustration with the limits of human communication, and a playfulness that stays on the right side of whimsy. Whether it’s a father’s helpless desire to protect his son, a boy failing to obtain weed to impress a girl, or two people sharing a smoke on the beach, Keret’s deep interest in human connection feels important in our fractured times. As George Saunders says, “I am very happy that Etgar and his work are in the world, making things better.” (Adam P.)

Out of Darkness, Shining Light by Pettina Gappah: A novel of the group of people who carried David Livingstone’s body (along with his papers and effects) 1500 miles so that he could returned to England, narrated by Halima, the expedition’s cook, and a formerly enslaved man named Jacob. Jesmyn Ward writes, “A powerful novel, beautifully told, Out of Darkness, Shining Light reveals as much about the present circumstances as the past that helped create them.” (Lydia)

Serotonin by Michel Houellebecq (translated by Shaun Whiteside): No contemporary French writer has interceded into the current Anglophone imagination quite as completely as Michel Houellebecq. From novels like The Elementary Particles to Submission, the cynical Houellebecq has explored everything from existentialism to sex tourism, through a voice that is simultaneously traditionalist and nihilistic, and critics and readers have argued how seriously we’re to take the reprehensible—racist, mysoginist, Islamophobic, colonialist—positions of the writer or his characters. Serotonin follows Florent-Claude Labrouste, a depressed libertine and former agricultural engineer who eventually rejects psychotropic medication in favor of a sojourn to the cheese-country of Normandy racked by globalization, where he becomes involved in an insurrection which looks very much like the gilets jaunes movement. Even while Houellebecq’s politics can be reprehensible, ranging from embrace of Brexit to denunciations of #MeToo, Serotonin’s observation of a contemporary capitalism where “people disappear one by one, on their plots of land, without ever being noticed” is instrumental in understanding not just France or Europe, but the world. (Ed)

Motherhood So White: A Memoir of Race, Gender and Parenting in America by Nefertiti Austin: In her debut memoir, Austin, a single black woman, writes about her journey to adopt a black boy out of foster care. In a recent interview, Austin said, “Ultimately, I wrote Motherhood So White out of necessity. I wanted black mothers who come after me to have multiple perspectives on motherhood, not just the mainstream definition of who gets to be a mom in America. I want white mothers to see black mothers on the page and know that we are all allies in the quest for raising compassionate children.” (Edan)

Doppelgänger by Daša Drndic (translated by S.D. Curtis and Celia Hawkseworth): World Literature Today calls this set of linked stories a “haunting requiem for the soul’s death in the wake of postmodernity.” Translation: Drndic’s trademark absurdist humor and image rich style assure that this slim collection will get the synapses firing. (Il’ja)

Gun Island by Amitav Ghosh: In 2016, Amitav Ghosh published The Great Derangement, which argues that contemporary literary fiction, among other art forms, seems unable to directly confront the scale and impact of climate change. In an article for The Guardian, Ghosh writes, of the extreme weather phenomena caused by climate change, “To introduce such happenings into a novel is in fact to court eviction from the mansion in which serious fiction has long been in residence.” Now, the author of the bestselling Ibis trilogy has written a novel that seeks to make a change in that tradition. Gun Island tells the story of rare books-dealer Deen Datta as he travels from India to Los Angeles to Venice, encountering people who will upend his understanding of himself, the world, and the Bengali legends of his childhood. (Jacqueline)

Dominicana by Angie Cruz: Life changes drastically for 15-year-old Ana, when she is uprooted from the Dominican countryside to New York City’s Washington Heights. An arranged marriage allows her, along with her entire family, to emigrate to America, and Ana is desperate to escape. As she opposes and embraces certain aspects of her new home, she makes difficult decisions between her duty to her family and her own heart. This exciting tale of immigration, love, and independence has been praised by the likes of Sandra Cisneros and Cristina Garcia, making it one of the most anticipated coming-of-age stories of the year. (Kate Gavino)

Quichotte by Salman Rushdie: Quichotte, a middle-aged salesman obsessed with television, falls head over heels for a TV star. Despite the impossible love, he sets off on a roadtrip across the US to prove himself worthy of her hand. Meanwhile, his creator, a middle-aged mediocre thriller writer, has to meet his own crisis in life. Rushdie’s new novel is Don Quixote for our time, a smart satire of every aspect of the contemporary culture. Witty, profound, tender, this love story shows a fiction master at his brilliant best. (Jianan Qian)

The Sweetest Fruits by Monique Truong: Three women from disparate backgrounds—Ireland, Cincinnati, and Japan—tell the story of one man: Lafcadio Hearn, a Greek author known for his books about Japanese legends and cultures. In this globetrotting, luminous novel, the three narrators offer an honest, contradictory portrait of the man they knew that highlights the social expectations of their gender, race, and class for their time. Like her first novel, The Book of Salt, The Sweetest Fruits leads readers on a sweeping narrative that poses questions about belonging, existence, and storytelling. (Kate Gavino)

Chimerica by Anita Felicelli: A fantastic, fantastical book built around the country of “Chimerica,” wherein a Tamil American trial lawyer is hard at work on a case…which happens to be a defense of a talking lemur come to life. Set in locations ranging from Oakland to Madagascar, Jonathan Lethem calls Chimerica “remarkable…a coolly surrealist legal thriller—in turns sly, absurd, emotionally vivid, and satirically incisive—that shifts the reader into a world just adjacent to our own.” (Read Felicelli’s conversation with Huda al-Marashi at The Millions here.) (Lydia)

Cantoras by Carolina De Robertis: In 1977 Uruguay, a military dictatorship crushes dissent and punishes homosexuality, but five queer women manage to find each other and a village on the beach where they’re safe and free, if only for a week at a time. The five call themselves cantoras, women who sing, and for the next three decades their friendships, beach-side refuge, and cantoras identities help the women find the strength to live openly and defiantly, to revolutionary effect. (Kaulie)

The Man Who Saw Everything by Deborah Levy: The protagonist of Levy’s newest would do well to avoid Abbey Road, where he is hit by a car twice, once in 1998, right before a trip to East Germany to bury his father’s ashes, and once again in 2016. From these two brushes with death, Levy spins one of her typically entrancing narratives, one that, like Hot Milk, explores cross-cultural encounters and the strange, intense, and occasionally monstrous nature of familial ties. (Matt)

Axiomatic by Maria Tumarkin: The fourth book from Australia’s Tumarkin, whose previous works have been shortlisted for several major literary prizes Down Under, Axiomaticsharply examines how we think about the force of the past on the present in a blend of storytelling, criticism, and meditation. The book spirals out from five axioms—think “Time Heals All Wounds,” “History Repeats Itself,” and “You Can’t Enter The Same River Twice”—to consider stories of struggle, trauma, and the strength of human relationships, creating a new and powerful nonfiction form along the way. (Kaulie)

The Shadow King by Maaza Mengiste: Mengiste’s debut novel, Beneath the Lion’s Gaze, chronicled the life of a family during the chaotic last days of Emperor Haile Selassie’s rule. The figure of Selassie looms over her second novel, The Shadow King, as well, this time in the 1930s as an orphaned servant Hirut is caught in the clash between the emperor’s troops and Mussolini’s fascist invaders. Mengiste’s work bookends this historic era of Ethiopian life, capturing all the damage and hope of war, with prose Salman Rushdie describes as “brilliant… lyrically lifting history towards myth.” (Adam P.)

Pet by Akwaeke Emezi: Emezi’s debut YA novel (following their much-loved Freshwater) sets out to answer a question that plagues every child at some point: Are monsters real, and if they are, do they want to hurt me? The children of the city of Lucille are taught that monsters are imaginary, but when protagonist Jam sees a creature emerge from the previously dead landscape of her mother’s painting, she’s forced to reconsider everything she knows about the world. Soon after, she learns that monsters are targeting her best friend Redemption, which leads her to wonder: How do you stop them if no one believes they exist? (Thom)

The Undying: A Meditation on Modern Illness by Anne Boyer: I hadn’t thought it possible to write beautifully about chemotherapeutic drugs until I read the excerpt from poet Anne Boyer’s The Undying that was published in The New Yorker. Witness: “Adriamycin, is named for the Adriatic Sea, near where it was discovered. I like to think of this poison as the ruby of the Adriatic, where I have never been but would like to go, but it is also called ‘the red devil,’ and sometimes it is called “‘the red death.’” Boyer’s memoir covers developing breast cancer at 41, her treatment, and her double mastectomy, as well as scrutiny of a capitalist driven medical industry. Boyer’s memoir is a “haunting testimony about death that is filled with life,” according to Kirkus. (Anne)

Night Boat to Tangier by Kevin Barry: Fans of the great Irish writer Kevin Barry have reason to rejoice. The prize-winning author of City of Bohane, Dark Lies the Island and Beatlebone is out with a scalding little hotwire of a novel called Night Boat to Tangier. The setup would’ve delighted Beckett. On October 23, 2018, two aged-out Irish drug-runners, Maurice (Moss) Hearne and Charlie Redmon, are sitting in the waiting room of the ferry terminal in the Spanish port of Algeciras. What are they waiting for? Maurice’s estranged daughter. As they wait, the men spin a reverie of past betrayals, violence and romance, with asides on drink, masturbation and the imminence of death. As always with Barry, the writing is slippery, slangy and sinewy, and a pure delight. (Bill)

Rusty Brown by Chris Ware: How long does it take to investigate, narrate, and illustrate an entire consciousness during one half of a typical day? In Chris Ware’s case, almost two decades. Across 350+ pages, Ware’s graphic novel unfolds like a Joycean spin on Grouse County, Iowa, depicting the melancholic, yearning thoughts of Midwestern characters moving through realities shared and cloistered. Doing that at all—let alone in 18 years—is superhuman. (Nick M.)
OCTOBER
Find Me by André Aciman: In a most-anticipated list, Aciman’s Find Me may be the most anticipated of all. Set decades after Oliver and Elio first meet in Call Me by Your Name, this novel follows Elio’s father Samuel, who while traveling to Rome to visit his son meets a young woman who changes his life; Elio, a classical pianist who moves to Paris; and Oliver, a New England college professor and family man who yearns to return to Italy. I’m aching to read this and I know I’ll be aching while reading it too. (Carolyn)

The Topeka School by Ben Lerner: The pre-pub blurbs for Lerner’s third novel are ecstatic, with his publisher calling it a breakthrough and Claudia Rankine describing it as “a powerful allegory of our troubled present.” Set in late 1990s Kansas, it centers on a lefty family in a red state. The mother is a famous feminist author; the father, a psychiatrist who specializes in “lost boys.” Their son, Adam Gordon, is a debate champion who unwittingly brings one of his father’s troubled patients into his friend group, to disastrous effect. (Hannah)

Grand Union by Zadie Smith: Grand Union is the first short story collection of Zadie Smith, the award-winning author of White Teeth and The Autograph Man, among others. Ten unpublished new stories will be put alongside with ten of her much-applauded pieces from The New Yorker and elsewhere. Everything, however familiar or small it may seem in daily life, glows in Smith’s brilliant observation. Grand Union is a wonderful meditation on time and place, past and future, identity and the possibility of rebirth. (Jianan Qian)

How We Fight for Our Lives by Saeed Jones: A 2014 NBCC finalist for his poetry collection Prelude to Bruise, How We Fight for Our Lives tells Jones’ coming-of-age as a black gay boy and man in the South via prose-poetry vignettes. From the publisher: “Blending poetry and prose, Jones has developed a style that is equal parts sensual, beautiful, and powerful—a voice that’s by turns a river, a blues, and a nightscape set ablaze.” (Sonya)

Your House Will Pay by Steph Cha: Your House Will Pay is a propulsive and well-plotted novel set in Los Angeles where crime and tension are at an all-time high. In Cha’s narrative that explores race, class, and community in Los Angeles, her characters must confront their histories and truth. Catherine Chung describes Your House Will Pay as “a devastating exploration of grief, shame, and deeply buried truths.” (Zoë)

Ordinary Girls by Jaquira Díaz: In her debut memoir, Jaquira Díaz mines her experiences growing up in Puerto Rico and Miami, grappling with traumas both personal and international, and over time converts them into something approaching hope and self-assurance. For years, Díaz has dazzled in shorter formats—stories, essays, etc.—and her entrée into longer lengths is very welcome. (Nick M.)

The Factory by Hiroko Oyamada (translated by David Boyd): Hiroshima-based fiction writer Hiroko Oyamada has been called one of the most “powerfully strange” new voices to emerge from Japan of late. No surprise then that she cites Franz Kafka and Mario Vargas Llosa as influences. This fall New Directions is publishing The Factory, Oyamada’s first novel to be translated into English, and that was inspired by her experience working as a temp for an auto worker’s subsidiary. The Factory follows three seemingly unrelated characters intently focused on their jobs—studying moss, shredding paper, proofreading documents—though trajectories come together as their margins of reality, and the boundaries between life within and beyond the factory dissolve. (Anne)

Things We Didn’t Talk About When I Was a Girl by Jeannie Vanasco: The CDC estimates 1 in 5 women in the U.S. are raped in their lifetimes, but concealed in those conservative, anonymized figures is the mind-bending enormity of 33,000,000 individual women and their stories. In her latest memoir, Jeannie Vanasco shares hers. Remarkably, Vanasco interviews the former friend who raped her 15 years ago, interweaving their discussions with conversations involving her close friends and peers to produce an investigation of trauma, its effects, and the ways they affect us all. “Courageous” is an inadequate word to describe this project, let alone Vanasco herself. (Nick M.)

Agent Running in the Field by John le Carré: le Carré is set to offer his 25th novel since debuting with Call for the Dead back in 1961. And though the territory is familiar—London, a played out spy, a web of political intrigue—there is nothing tired in the author’s indictment of modern life: we are fickle, selfish, dogmatic, narrow minded and too often cruel bastards. The whole lot of us. My advice: if you have been stuck on thought that Le Carré is writing “spy novels” and you don’t like “spy novels”, you need to rethink. There is perhaps no more thrilling chronicler of the human condition working today. His stories are about people with secrets. You know, us. (Il’ja)

False Bingo by Jac Jemc: The unsettling horror that made Jac Jemc’s The Grip of It such an unnerving read has mutated into an uneasiness that infiltrates the everyday lives depicted in False Bingo, Jemc’s second book of short stories. Jemc’s characters are misfits and dislocated, and their encounters often cross the line where fear becomes reality. There’s a father with dementia who develops an online shopping addiction and an outcast mulling over regret as he taxidermies animals. In essence False Bingo is a “collection of realist fables exploring how conflicting moralities can coexist: the good, the bad, the indecipherable.” (Anne)

Reinhardt’s Garden by Mark Haber: Haber, who has been called “one of the most influential yet low-key of tastemakers in the book world,” is about to raise it to up level with the debut of his novel, Reinhardt’s Garden. This absurdist satire follows Jacov Reinhardt and scribe as they travel across continents in search of a legendary philosopher who has “retired” to the jungles of South America. It’s “an enterprise that makes Werner Herzog’s Fitzcarraldo … come off as a levelheaded pragmatist,” says Hernán Díaz. While Rodrigo Fresán calls it “one of those perfect books” on the level of Djuna Barnes’ Nightwood, Denis Johnson’s Train Dreams, or Thomas Bernhard’s The Loser. (Anne)

Older Brother by Mahir Guven (translated by Tina Kover): Awarded the Prix Goncourt for debut novel in 2017, Older Brother takes on the Uberization of labor alongside a look at immigration, civil war, and terrorism through the story of two brothers from a French-Syrian family, and their father, a taxi driver whose way of life is utterly at odds with those of his sons. (Lydia)

Last of Her Name by Mimi Lok: In Last of Her Name, the new collection from Chinese author Mimi Lok, the stories’ settings cover a little bit of everything—British suburbia, war-time Hong Kong, modern California—and the diasporic women at the heart of each piece are just as eclectic. The effect is a kaleidoscope of female desire, family, and resilience. “I can’t think of a collection that better speaks to this moment of global movement and collective rupture from homes and history, and the struggle to find meaning despite it all,” writes Dave Eggers. (Kaulie)

The Girl At the Door by Veronica Raimo: Let’s say you fall in love while on vacation. The guy, a professor, seems great. You leave your country and move in with him. You get pregnant. You’re happy. Then: A girl shows up at the door. She’s your boyfriend’s ex-girlfriend, a former student, with details about a violent, drawn-out affair. What now? That’s the premise of this novel, one that dissects sexual harassment and assault from the point of view of both the professor and his girlfriend. Raimo has published two novels in Italy; this is her English-language debut. (Hannah)

Holding On To Nothing by Elizabeth Chiles Shelburne: This debut novel set in the mountains and hollows of Eastern Tennessee will charm you with its warmth and love for its characters, a cast that includes a dog named Crystal Gale. (Which has to be one of the best pet names in fiction.) The novel centers on Lucy Kilgore, a young woman who was planning to leave small town Tennessee but instead ends up getting shotgun-married to Jeptha Taylor, a bluegrass musician with a drinking problem. With too little money and too much alcohol in their lives, their little family is doomed from the start, but Lucy can’t help trying to hold everyone together. (Hannah)

A Peculiar Kind of Immigrant’s Son by Sergio Troncoso: A collection of stories about told from the perspective of a Mexican-American man born to poor parents and making his way through the elite institutions of America. Luis Alberto Urrea calls the book “a world-class collection.” (Lydia)
NOVEMBER
The Revisioners by Margaret Wilkerson Sexton: Sexton’s first novel, A Kind of Freedom, was on the longlist for the 2017 National Book Award and appeared on a number of year-end best-of lists. The Revisioners, a multigenerational story focusing on black lives in America, begins in 1925, when farm-owner Josephine enters into a reluctant, precarious relationship with her white neighbor, with disastrous results; nearly 100 years later, Josephine’s descendant, Ava, out of desperation, moves in with her unstable white grandmother. The novel explores the things that happen between; the jacket copy promises “a novel about the bonds between a mother and a child, the dangers that upend those bonds.” (Edan)

In the Dream House by Carmen Maria Machado: After the runaway and wholly-deserved success of her magnificent short story collection, Her Body and Other Parties, Machado returns with a memoir chronicling an abusive relationship. Juxtaposing her personal experience with research and cultural representations of domestic abuse, the book defies all genre and structural expectations. Writer Alex Marzano-Lesnevich writes that Machado “has reimagined the memoir genre, creating a work of art both breathtakingly inventive and urgently true.” (Carolyn)

Nothing to See Here by Kevin Wilson: Would you be the nanny to your ex-best-friend’s stepchildren? Yes, really? Okay. What if they were twins? Still with me? What if they exhibited strange behaviors? Still on board? What if they spontaneously caught fire when agitated? Yes? Then you must be the kind of character that only Kevin Wilson can pull off, in this, his third novel that marries the fantastic with the domestic. (Hannah)

Space Invaders by Nona Fernández (translated by Natasha Wimmer): Chilean writer Nona Fernández is revered as one of the most important contemporary Latin American writers and her novel explores the experience of growing up in a dictatorship and trying to grapple with erasure and truth in adulthood. Daniel Alarcón writes, “Space Invaders is an absolute gem…Within the canon of literature chronicling Pinochet’s Chile, Nona Fernández’s Space Invaders is truly unique.” (Zoë)

The Book of Lost Saints by Daniel José Older: Spanning generations, Older’s latest tells the tale of a family split between New Jersey and Cuba, who grapple with the appearance of their vanished ancestor’s ghost. The ancestor, Marisol, went missing in the tumult of the Revolution, taking with her the family’s knowledge of their painful and complicated past. When Marisol visits her nephew, he starts to learn about her story, which hinges on “lost saints” who helped her while she was in prison. (Thom)

They Will Drown in Their Mothers’ Tears by Johannes Anyuru (translated by Saskia Vogel): Anyuru, a Swedish-Ugandan author, took home the Swedish-language August Prize for Fiction for this tale of authoritarianism and hate in modern Europe. After terrorists bomb a bookstore for hosting a provocative cartoonist, one of the terrorists has a vision of the future she may have brought about. Years later, a psychiatrist goes to visit her in the clinic where she’s been institutionalized, and she informs him she’s a traveler from an awful, dystopian future. As she describes a world in which “anti-Swedish” citizens are forced into a ghetto called The Rabbit’s Yard, the psychiatrist grows convinced that her sci-fi predictions are the truth.

What Burns by Dale Peck: Dale Peck has published a dozen books – novels, an essay collection, a memoir, young-adult and children’s novels – and along the way he has won a Lamda Award, a Pushcart Prize, and two O. Henry Awards. Now Peck is out with something new: What Burns, his first collection of short fiction. Written over the course of a quarter-century, these stories are shot through with two threads that run through all of Peck’s writing: tenderness and violence. In “Not Even Camping Is Like Camping Anymore,” for instance, a teenaged boy must fend off the advances of a five-year-old his mother babysits. And in “Bliss,” a young man befriends the convicted felon who murdered his mother when he was a child. Tenderness and violence, indeed. (Bill)

White Negroes: When Cornrows Were in Vogue … and Other Thoughts on Cultural Appropriation by Lauren Michele Jackson: Scholar and writer Lauren Michele Jackson, who has written many incisive essays on popular culture and race for Vulture and elsewhere, now publishes her first book, an in-depth exploration of the way white America continues to steal from black people, a practice that, Jackson argues, increases inequality. Eve Ewing says of the book: “We’ve needed this book for years, and yet somehow it’s right on time.” (Lydia)

Vernon Subutex 1 by Virginie Despentes (translated by Frank Wynne): A writer and director dubbed the “wild child of French literature” by The Guardian, Despentes has been a fixture on the French, and global, arts scene since her provocative debut, Baise-Moi. Translated by Frank Wynne, this first in a trilogy of novels introduces us to Vernon Subutex, a louche antihero who, after his Parisian record shop closes, goes on an epic couch-surfing, drug-fueled bender. Out of money and on the streets, his one possession is a set of VHS tapes shot by a famous, recently deceased rock star that everyone wants to get their hands on. (Matt)

The Fugitivities by Jesse McCarthy: The debut novel from McCarthy, Harvard professor and author of essays destined to be taught in classrooms for years to come (among them “Notes on Trap”), The Fugitivities takes place in Brooklyn, the Bronx, and Brazil, with Parisian interludes. The novel explores the collision of a teacher in crisis with a basketball coach yearning for a lost love, carrying the former on a journey that will change everything. Of The Fugitivities, Namwali Serpell writes “In exquisite, often ecstatic, prose, McCarthy gives us a portrait of the artist as a young black man—or rather, as a set of young black men, brothers and friends and rivals.” (Lydia)

Jakarta by Rodrigo Márquez Tizano (translated by Thomas Bunstead): A man and his lover are trapped in a room while a plague ravages the city in this “portrait of a fallen society that exudes both rage and resignation.” Tizano fashions an original, astonishing, and terrifyingly unhinged dystopia in this, his debut novel. Thomas Bunstead adds to an impressive resumé with a seamlessly literary and peppery translation from the Spanish. (Il’ja)
DECEMBER
Dead Astronauts by Jeff VanderMeer: Not all writers can make you feel human emotions about ectoplasmic goo, but not all writers are Jeff VanderMeer. In his latest spin-off from Borne and The Strange Bird, VanderMeer again invites us to the hallucinatory ruins of an unnamed City, beshadowed by the all-powerful Company, and rife with all manners of mysterious characters. Fish, foxes, and madmen, Oh my. (Nick M.)

The Ascent of the Sick-Girl Narrative

1.
I recently saw a playwright I had studied with at a cafe. Her mother had just been hospitalized and this led to a discussion of how women’s symptoms of heart attack often present differently than the “typical” signs we’ve been told to look for. Nausea and vomiting, pain radiating up the arm, shortness of breath, fatigue and sweats. Not crushing chest pain. Gender plays a role in how an illness presents and how medications work, and it can affect prescription dosages too. Women make up half the population but most medical research is biased toward men. My grandmother also suffered from a few heart attacks with atypical presentation. It was a challenge to persuade her to go to the doctor then, or ever. While her reasoning was never explicitly stated, it was clear that she would rather die than spend more time institutionalized, which was how she passed a number of her middle years, due to schizophrenia.

Women make up a disproportionate number of mental health cases, too. We are twice as likely to suffer from depression. Twice as likely to develop an anxiety disorder. At greater risk than men for developing bipolar disorder and seasonal affective disorder. As I have been thinking more about women and illness, I’ve been struck by the proliferation of memoirs about women’s illness published recently—and there’s more on the horizon, including Anne Boyer’s much-anticipated memoir, The Undying, recently excerpted in The New Yorker. There were enough that I started thinking of these memoirs within their own subcategory, what I came to call “sick-girl narratives,” a term that aligns with Tiqqun’s Preliminary Materials for a Theory of the Young-Girl. The only requirement for the Young-Girl is that “she” is a model citizen, i.e., consumer:
The Young-Girl is not always young; more and more frequently, she is not even female. She is the figure of total integration in a disintegrating social totality.”
The Young-Girl is ever consuming, is desirable; she is spectacle, a brand, a handle. In this way, the healthcare industry has made us all Young-Girls as our bodies have entered its labyrinthine system.

The healthcare industry is this country’s largest employer and accounts for nearly 20 percent of the GDP. It may not be apparent to readers of this site, but I have been working in healthcare for as long as I’ve been out of undergrad. My first degree was in pharmacy and for nearly 20 years I have been writing alongside working in hospitals, in long-term care, and now for a drug company. I’ve had a good glimpse of healthcare’s flawed systems as a provider as well as a patient.

I’m sure I don’t need to tell you that healthcare prices are rising and we receive fewer services in return—we’ve all felt the pinch. What does this mean in real-life terms, in our era of late capitalism? I am relatively healthy; my only real problem is a tendency toward depression that’s relatively under control. Even so, medical expenses are my largest monthly pay out, even taking into account the government credit. I am grateful for Obamacare, or rather, despite Obamacare being flawed and slowly being undone by many forces, I am grateful that I am able to afford the support I need. In 21st-century America, healthcare is a privilege few can afford, not the accessible and affordable service that it should be.

Our narratives have been shaped by the ways we experience illness, by the illnesses we live with, by the advertisements we see on TV that make us wonder if we are less happy than we should be, if our bowel problems could be eased, or perhaps our social malaise can be cured at the local ketamine clinics that now sponsor public radio. Illness is a lens through which we see ourselves. How could it not be? So much has been written on the experience of being ill, from Virginia Woolf and Susan Sontag to Robert Burton and William Styron. But that’s not the point. The point is that the industry has its grip on our wallets and our bodies, and thus our minds. This has played a role in making medical narratives a primary focus.

Our bodies and their state of upkeep preoccupy us, in part because we are built for this, but also because our healthcare systems rely on this and our recurring needs. When we’re ill we have little choice but to forge ahead and try to find our way through the convoluted and often disorganized system. Illness takes a toll not just physically but also financially. Nearly half of people diagnosed with cancer drain their total assets within two years. As Tiqqun states: “The initial form of Biopower is a process of submission to and by the body.” The point I’m getting at is that our preoccupation with medicine isn’t coincidental. It’s systemic, and this plays a role in the stories we’re drawn to and the stories we tell, such as these memoirs of illness and specifically those of the sick-girl.

Let’s consider this rather sudden appearance of memoirs written by literary women who’ve published at least one novel. Each of their current books is devoted to chronicling struggles with an affliction, whether it’s addiction or mental illness or late-stage Lyme disease. It’s possible that their inclinations toward writing fiction have made them more adept at depicting the emotional terrain of their own lives. In memoir, the empathy the novelist would bestow upon her characters is turned on its head. As Leslie Jamison writes in her essay, “Empathy Exams,” about her job as a medical actor role-playing sick patients for medical students learning how to diagnose, empathy is a focused and discrete attention paid to another’s experience that requires an effacement of self: “Empathy isn’t just remembering to say that must really be hard— it’s figuring out how to bring difficulty into the light so it can be seen at all. Empathy isn’t just listening, it’s asking the questions whose answers need to be listened to. Empathy requires inquiry as much as imagination. Empathy requires knowing you know nothing.”  In the sick-girl narrative, the attention is turned inward to chronicle the author’s experiences of recognizing, treating, and living with illness. The empathy evoked is of the reader, who is encouraged to find compassion for the author’s account.

2.
In The Recovering, Leslie Jamison writes about her struggles with alcoholism while also attempting to disrupt our culture’s mythos of the alcoholic creative genius.  Jamison has stated that her intention was to elevate a multiplicity of addiction narratives while examining alcohol’s detrimental effects on some of the literary alcoholics who have been immortalized—from Raymond Carver to John Berryman to Jean Rhys to Denis Johnson (the list goes on). However, Jamison’s statement comes off as somewhat disingenuous when considered alongside the book’s contents. She isn’t employing Svetlana Alexievich’s methods of self-effacement by creating a tapestry of voices. Instead Jamison’s recovery narrative forms the backbone of the book, upon which these other compelling addiction narratives hinge. I mostly find Jamison’s account of her attraction to and subsequent struggles with alcohol solipsistic for the way that her story overwhelms the others. It’s not that she lacks empathy when retelling these stories. Rather, Jamison’s scrutiny and focus on her own struggles with alcohol dominate the book. Her intense first-person account overshadows the myriad other voices of addiction interspersed throughout the book’s 545 pages. (Mind you, I did first encounter the book on Audible, during a road trip where I listened to Jamison read her text for hours on end—there was no escaping her voice. It’s possible the book may have left a different impression had I first encountered it on the page.)

And yet, what memoir couldn’t be called solipsistic? It’s Jamison’s denial that The Recovering gives her narrative primacy that I find frustrating. Jamison aligns her plight with the struggles of the creative genius by placing them side-by-side. This is a longstanding trope of the “mood memoir,” writes Katie Rose Guest Pryal. The mood memoir is a subgenre in a long tradition of memoirs, including slave narratives and spiritual memoirs, told in order to give voice and authority to the oppressed. Daniel Paul Schreber is the author of perhaps the first contemporary mood memoir, Memoirs of My Nervous Illness—but, even so, his long trippy text is also part spiritual narrative. In his hallucinations, both God and demons spoke to him directly. In the preface, Schreber explains that his intent in writing the memoir is twofold. He wants to declare what has been revealed through his direct communication with God, and he intends to offer an explanation for his “oddities of behavior” and eccentric beliefs to the community he will rejoin when he leaves the asylum.

Guest Pryal writes that one of the four key features of the mood memoir is that it points to other well-known people who have lived with a similar affliction, in order to establish their authoritative stance and to imply this impairment can also be a gift. Jamison does this with a twist. While Jamison’s stated intent is to reveal the bleak toll alcoholism takes on even these wildly creative individuals—such as when Jean Rhys and her husband drank Champagne to calm their nerves as their baby lay dying at the hospital—I sense in this iconoclasm an underlying reverence for these myths. I mean, how awful and yet how wonderful that Rhys’s Good Morning Midnight exists. I think most young writers, myself included, have fallen prey to the myths of their literary heroes. It’s one thing to encounter an author on the page and another thing all together IRL.

In meeting Jamison on the page, I wish she had lingered longer with her moments of vulnerability. How tortured she was by the shame of her intense shyness and naiveté. How she questioned the contradiction of self-effacement despite her strong, driving ambitions. But she glossed over this for better plot points: We hear of her drinking excessively while pregnant, while wearing a heart monitor, drinking often and in ways that gave her access to communities with cachet, via parties at Yale, at the Iowa’s Writer’s Workshop.  Jamison desired to live largely, like Icarus flying near the sun, and she fell. And yet, how far? This isn’t the question to ask of an author attempting to subvert the notion that a story must be original or extraordinary to have value. One point that does come through is that it doesn’t matter how far one falls, whether one drinks herself into a coma or never misses a deadline. The daily struggle to become and remain sober is as real and perhaps even more so when admitting the ubiquity of this plotline.

3.
“Pacing, they told me at graduate school, is one of the beginning writer’s biggest challenges, because a beginning writer wants to tell all the wrong things, or everything at once,” writes Esmé Weijun Wang in her book of essays, The Collected Schizophrenias, that recounts Wang’s experience living with schizoaffective disorder and examines the scope of what living with schizophrenia means in its myriad varieties. The remark about pacing is made as she recounts preparing for an appointment with her psychiatrist, where they will decide whether she should receive electroshock therapy, used to treat severe depression and mania and a host of recalcitrant symptoms of mental disorders. Wang doesn’t discuss the treatment, its implications, the potential side effects of retrograde amnesia, or the treatment’s long history of use and efficacy despite its associated stigmas. As Wang prepares for her consult, she is deciding what to wear. Look too put together and her suffering will not taken seriously. Look too disheveled and she might be admitted to the psych ward.

I was befuddled by this emphasis on Wang’s preparation for the consultation rather than what transpired. The reader never learns the outcome, if she endured ECT, what her physician recommends. That couldn’t be her point, could it? Perhaps. This interruption gives way to more questions. Why does she stop here? Is Wang attempting to give a play-by-play account of her medical history? She certainly isn’t. Instead it seems she’s revealing how she must be hyperaware of her presentation of self and symptoms, as if she needs to enact an idealized version of her illness. Whose ideal? The doctors’? Or the industry’s? One that conforms just enough to the DSM? All of the above. It’s evident Wang adjusts her appearance so that her illness will be visible but just enough. Unlike Jamison’s role as a medical actor, Wang is enacting the symptoms of her own disease. Is this manipulative? Yes, and unfortunately it’s necessary. Wang has learned that this is a way she can navigate the system.

She then directs the reader’s attention back to her preoccupations: her fear, her ability and inability to negotiate the system, a nurse who blames Wang for her delusions during another hospitalization—a result of her lacking faith in Jesus, the nurse claims. Which opens another can of worms, including how is our system even called healthcare? This nurse is assumed to be the “sane” care provider, while it’s obvious that she suffers from her own delusions.

Wang reveals again and again through her own encounters with the medical system that treatment for mental health operates on many tiers. Our individual experiences are modulated by the treatment we have access to and the healthcare systems we navigate. But so much about our experiences also comes down to personal interactions: the nurse who is attentive or stretched too thin. The dismissive doctor or the practitioner with a vested interest in isolating a difficult-to-pin-down diagnosis. Wang recognizes the importance of perception, and her role in what she signals to her providers. Her history as a fashion blogger helps her here. Again, I’m thinking of the Theory of the Young-Girl. The skills of manipulating her appearance, of the performance of everyday life (à la Erving Goffman) are inherent to her way of defining self. She’s very sophisticated in her presentation, in her appearance, and to be able to gauge how she will appear to someone else. She’s an expert navigator, generally able to recognize the difference between her perception and reality, and she’s largely able to see where these points converge. Dressing to impress or to seduce or to signal that she’s ill—it’s all about appearances.

Wang can pass as neuronormative in society and she’s aware of this, that this gives her autonomy and power and respect that’s not afforded to those who are less able, lower functioning, less intelligent. However, Yale wasn’t compassionate when Wang became incapacitated and was admitted to the psych ward. Wang’s expulsion, resulting from her psychiatric hospitalizations, and Yale’s later refusal to readmit her is shocking. It sends a striking message about how her mental illness stigmatized her, even after it was controlled.

Self-worth is an obsession that haunts Wang throughout the book. She often highlights her credentials as if she needs to prove herself to her audience. As if the reader needs a reminder that her capacities are far vaster than her diagnosis. As if she needs to remind herself of her self-worth. She says more than once that having gone to Yale is a signifier of her value. Similarly, she makes sure to remark during a speaking engagement that she went to a “prestigious university”: “That phrase, ‘prestigious university,’ was there to underscore my kempt hair, the silk dress, my makeup, the dignified shoes. It said, ‘What I am about to disclose to you comes with a disclaimer.’ I didn’t want my audience to forget that disclaimer when I began to talk about believing, for months at a time, that everyone I love is a robot.” Her emphasis on these external markers can be frustrating to someone who doesn’t buy into the institutional prestige machine, that credentials make for valuable people. And yet, I empathize with Wang’s need to demonstrate her value by reminding us of the intrinsic value of her personhood.

This focus on value is not coincidental. As Tiqqun writes, value is the standard measure of self, and that this image must be perpetuated and sold.  “The Young-Girl would thus be the being that no longer has any intimacy with herself except as value, and whose every activity, in every detail, is directed toward self-valorization. At each moment, she affirms herself as the sovereign subject of her own reification.” Wang’s personhood and intelligence has been devalued by her diagnosis—by the academy, by the healthcare system, by society—and so she reasserts her value again and again. But what about lower-functioning schizophrenics? What does this mean for those who don’t have a Yale admission? Wang speaks within this system of value, rather than questioning why she feels she must.

Without Wang’s delusions and hallucinations, which at times result in incapacitation, she would appear to be living a wildly successful version of a life. She is impeccable on paper—with a psychology degree from Stanford and an MFA from the University of Michigan. Her accolades include being anointed one of Granta’s Best Young American Novelists and winning a Whiting Award for her nonfiction. She married her college sweetheart who she met during her first tumultuous year at Yale. On the surface, she’s the epitome of achievement.  As Katie Rose Guest Pryal states, disability must be made invisible in the mood memoir. In this sense, it’s no surprise that Wang’s narrative has been embraced by People and the Today show. She demonstrates without fail how she’s an exceptional person. That Wang is exceptional is part of why it’s easy for the media, and the public at large to embrace her narrative, and her disability. Guest Pryal writes: “The rhetoric of these memoirs “tends to remove the stigma of disability from the author, leaving it in place for other individuals with the condition in question.”  So this is the trickle down theory of uplift.

4.
Wang knows mental illness is in her genetic make-up, with her mad great-aunt and her mother’s cousin who committed suicide and her mother, who at one point suggested that she and her daughter kill themselves together. Perhaps mental illness is also environmentally triggered, triggered through trauma. Wang encounters a neurologist who says that one day all mental illness will be linked to autoimmune disorders. Wang has flare-ups that appear with a fever, without a trigger, and she seeks answers, a cure. She wonders if late-stage Lyme disease could be a culprit—while also admitting that Lyme disease is a “belief system” of its own.  Late-stage Lyme is difficult to pin down, with many diffuse symptoms in people who often otherwise appear well. What they share is, “desperation based in suffering, and based on a system of conventional medicine that not only has no method of alleviating that suffering, but also accuses us of psychosomatic pathology.”

This accusation of psychosomatic pathology is no stranger to the sick girl. Think of hysteria of the old days and the water cure. Women with illness are viewed as less reliable narrators. Women with pain are more likely than men to be prescribed sedatives; they experience pain longer in the ER before being given an analgesic. Women experience the majority of chronic pain and yet the majority of pain studies focus on men’s pain. To be taken seriously the sick girl must appear ill, and if ill then also weak, and if weak, then she is less likely to be taken seriously. It’s a loop that’s easy enough to enter but difficult to emerge from healed.

Late-stage Lyme sufferer Porochista Khakpour is a friend of Wang’s and they seek Lyme treatment together in Santa Fe, N.M. Khakpour is also an author of a sick girl narrative, the aptly titled Sick, which explores her confluence of afflictions: addiction, depression, and late stage Lyme. Khakpour is a self-confessed sick girl of many kinds. “People ask me for advice, and I tell them to look elsewhere…I am not the poster girl for wellness,” she writes. “I am a sick girl. I know sickness. I live with it. In some ways, I am keeping myself sick.”

It’s impossible to isolate Khakpour’s symptoms as related to her individual illnesses. Her depression, addiction, and neurological  deficits from late-stage Lyme intermingle. She’s lived in exile most of her life, a child of the Iranian Revolution, whose family sought political asylum in the U.S. She writes that she’s never felt at home in the world. This alienation plays its own role in the manifestation of her illness. Her community has failed her, and now the medical industry is failing her again. They will be her audience, however, as long as she can pay them. Tiqqun writes, “The Young-Girl mortified her flesh in order to take revenge on Biopower and the symbolic violence to which the spectacle subjects it. The distress she exhibits overwhelmingly reveals, in its former aspect of unshakeable positivity, sexual pleasure as the most metaphysical of physical pleasures.” Khakpour’s photo, face forward, wearing a nasal oxygen cannula, would not be on the cover of the book if there weren’t enacting a form of seduction while playing up her sick girl visage.

She had originally planned to write a book with more of a conventional narrative arc, one of recovery and triumph, where she heals herself. It’s wishful thinking as this isn’t the path her chronic illness takes. Instead, it persists and she continues to seek medical care, and her life is a revolving door of practitioners who want to help, who try to help, who are quacks, who are incompetent, who lack time, who lack compassion.

I admire how Khakpour allows the unforeseen progression of her illness to reshape and muddy the conventional arc she’d planned. She follows it down its rabbit hole. This narrative off-roading, if you will, “reminded [her] that illness will always be with you as long as life is with you. And tragedy will be with you too.”  Khakpour’s multiple diagnoses have presentations that aren’t necessarily discrete from each other, that bleed into each other. It’s complicated. The comorbidity of mood disorder and late-stage Lyme, which some write off as “psychosomatic” doesn’t help her come off as a reliable narrator within the healthcare system.  She deserves and needs a sensitive and knowledgeable practitioner to suss out the etiologies of her pain. She can afford this, at times. But also, her medical expenses exceed her resources and she must rely on a GoFundMe, to offset her debts—a system that relies on the generosity of others, their compassion and empathy and call to action. Her narrative extends validation to others who are suffering without acknowledgment, but her story also validates her own suffering. As Khakpour writes: “And the deal with so many chronic illness is that people won’t believe you. They will tell you that you look great, that it might be in your head only, that is likely stress, that everything will be okay. None of these things are the right things to say to someone whose entire existence is a fairly consistent torture of the body and mind.”

One of the sick girl’s biggest challenges is having practitioners take her pain seriously. If her presentation of symptoms is evasive, non-specific, she must act the role of the weak woman in need of help. Her sickness doesn’t conform to the physician’s diagnoses, there are no effective treatments for post-treatment Lyme disease, i.e. the symptoms of Lyme disease that persist after a course of antibioitcs. Even the Center for Disease Control and Prevention’s resources state a skepticism regarding symptoms that remain post-treatment. The sick girl is solipsistic because the system forces her to be preoccupied with her body, and she is preoccupied because she is suffering. She must follow her pain, listen to her intuition, in order to receive attention and care, to seek and find relief. And the general  disbelief from the system, when doctors don’t clearly see the results they’re looking for, turns on her itself. The sick girl questions her sanity. Khakpour makes too many ER visits to keep track of, seeks referrals and opinions, tries alternative therapies that cost up to $1000 a day. Think of all the energy her illness requires. Think of the monetary drain. Think of her adjunct’s salary and what she can afford. What she can’t afford. How she barely has the time or energy to teach. She’s not a model of health, but she deserves to be seen by doctors and followed by a team of healthcare providers. She deserves to have her pain taken seriously and a Lyme disease assay to be taken when it’s first suggested. This is not the story she lives out. This is not the system available in our country.

Without capital, without Biopower, without a man’s body, without a neuronormative mind there is less care available than there should be.  I wish we were closer to creating a network of support more focused on sustaining health than on the accrual of wealth, but wishing isn’t enough when it comes to one’s health. The repetition of chronic illness, of seeking help, of having to advocate to receive good care, is maddening. The industry thrives on it. And other industries also feed off it, including publishing, including the propagation of the sick girl and her narratives. So much is about what is made visible. One thing is sure: the suffering is real, and continues. As Wang stated, she doesn’t ever expect to be cured, and through our experiences we come to see ourselves anew: “I …do not consider it possible to ever be completely free of the schizophrenias. They have been with me for too long, I think, to be obliterated, unlike these more recent ailments, which feel like part of the wrong narrative, and make me wonder how many different types of sick girl I can be.”

Image credit: Unsplash/ Lacie Slezak.

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